Monday - October 1, 2012
Megan suggested that we start a pool and predict my platelet level in today's blood draw. I need my platelets to be at 35 in order for my (11th!!) hospital admission to stay on track for tomorrow. While Megan and I put in a 50 and a 42 respectively, Joe put forward a 33 BUT said that with my numbers moving up and a hefty dose of goodwill, my hospital admission will still go ahead. Now that's a bet with chutzpah. I should know by early afternoon ....
In any case, I will be getting a Rituxan infusion today but NOT having a lumbar puncture for intrathecal chemotherapy. Because the methotrexate penetrates the central nervous system, the high level of this week's methotrexate infusion makes the intrathecal treatment redundant and unnecessary. I am more than happy to avoid another spinal tap :) Home by mid-afternoon!
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1:30 update: Ah, waiting at Dalton .... To quote Joseph, "I was counting on the fact that after dropping you off 2 hours ago, nothing would have happened". Well, technically, the basics have happened; my port is accessed, blood was drawn, and my blood labs are back and it's only been 3 hours .... Big BIG news however .... My platelets are in at 53 (Megan wins the pool!) but Dr. Perkins does not want to admit me for the high-dose methotrexate until my platelets are at 75. So - surprisingly - my hospital admission has been delayed a week. I don't need to return to Dalton for (wait for it folks, this is MORE BIG news) an ENTIRE WEEK! Found time at home. I am at a bit of a loss - but happy!
As for today, we are STILL waiting for a call from the infusion room, then my pre-meds, then wait for the pre-meds to kick in, then hope that the Rituxan is waiting and at hand, then 2 hours of Rituxan. Joe has foraged an Au Bon Pain caprese sandwich for me and is now off on a walk.... I remain all ears waiting for my name to be called! Forget DMV folks, these waits are epic.
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Home at 5:55. What was I thinking writing "Home by mid-afternoon!" That's just crazy-talk, Christine.
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