An unused communication tool, tucked in a corner |
This morning, I find myself "mad as a wet hen" after being roused at 5 a.m. by a care partner who turned on the fluorescents and announced herself upon entering my door. I was irritated enough in my just-in-REM state to declare "lights off please" and after her protests (!!!!) voiced that in my 30+ nights in the hospital no other care partner has needed light (unvoiced: to put on a blood pressure cuff, pop an oximeter on my finger, and read a large, brightly lit LED monitor). I could have gone on and on to expound on previous and amazing sleep-respectful feats from RNs and care partners: hanging and taking down chemo bags, monitoring my blood pressure for two hours the first time I was infused with Rituxan (thank you Gabrielle), and doing regular blood draws as quietly as possible in the depths of the night. Yes, these are all disruptive but NEVER have the flourescents been tripped in the dark of the night. NOT cool. Closing the door (not allowed in my posted "neutropenic precautions" state due to air pressure) was the final straw. The GOOD news is that I was so exhausted yesterday that this 5 a.m. wake-up has been made palatable by last night's 9:45 bedtime.
A negative harbinger about today's medical news is that my night RN was just in for tonight's second CBC blood panel; my levels are so low and going down (talking to YOU platelets!) that the attending wants them rechecked. But my temperature has stabilized in the low 99s so can I please just go home?
I am basking in the sun on this beautiful day! |
August 2009, Jonathan moves into West Egg |
So, how about some positive news! I enjoyed a wonderful visit yesterday with Sally and my mother. Sally brought some terrific Vietnamese pho - just what I needed to sate my appetite without exacerbating my mucositis. Joseph came later for a dinner and evening visit. Oh, I am wishing to be home -- soon! Megan has begun her formal packing for next weekend's move into her new house and Jonathan is in full preparation for his semester which starts today! Is he really beginning senior year? It's been such a full and happy experience for him at Virginia Tech. The memory of driving down to Blacksburg in the pre-dawn darkness remains strong: Jonathan snoring open-mouthed in the passenger seat, me listening tearily to the radio. He was so excited to arrive, move in, and set off for Hokie Camp. I can scarcely believe it's been three years!
2 comments:
Hey, look at what a beautiful view you have today! Gotta love those pretty cloudscapes.
My FAVORITE sky! I feel like a cat in this patch of sunshine by the window :) Lovely.
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